What’s in a smile? Politicizing disability through selfies and affect

Research output: Contribution to journalArticlepeer-review

Abstract

This article focuses on selfies and empowerment of individuals with physical disabilities. By exploring the #FSHDselfies campaign as a case study, I discuss the role affect plays in mediated advocacy for the representation of non-normative bodies, allowing disabled individuals to gather as a community and disrupt contemporary beauty standards. I draw on the case study to re-articulate the term “community of affect” (Climo, 2001) as the socio-political structure that promotes marginalized groups’ negotiation of collective identity and communal action geared towards cultural, social, and political change. This community can be seen as a sub-section or a specific discursive space categorized under “affective publics” (Papacharissi, 2014). I show in this context how participatory forms of representation open a space for negotiation and criticism of marginalized groups on the one hand, while oversimplifying the complex and diverse lives of minority groups on the other hand.

Original languageEnglish
Pages (from-to)36-50
Number of pages15
JournalJournal of Computer-Mediated Communication
Volume24
Issue number1
DOIs
StatePublished - 1 Jan 2019
Externally publishedYes

Keywords

  • Affect
  • Burden of representation
  • Disability
  • Facioscapulohumeral muscular dystrophy (FSHD)
  • Online advocacy
  • Selfies

All Science Journal Classification (ASJC) codes

  • Computer Science Applications
  • Computer Networks and Communications

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