TY - JOUR
T1 - Quality of life disparities between persons with schizophrenia and their professional caregivers
T2 - Network analysis in a National Cohort
AU - Rotstein, Anat
AU - Roe, David
AU - Gelkopf, Marc
AU - Shadmi, Efrat
AU - Levine, Stephen Z.
N1 - Funding Information: This publication is based on the results of the Outcomes Project that was conducted by Professor David Roe and Professor Marc Gelkopf of The Center for Mental Health Research, Practice and Policy at the Department of Community Mental Health with joint funding from the Israeli Ministry of Health and the Laszlo N. Tauber Family Foundation. Funding Information: We gratefully acknowledge the ongoing collaboration with the Mental Health Rehabilitation Department, especially Ronit Dudai and Vered Balush, and the Department of Information and Evaluation at the Ministry of Health, especially Rinat Yoffe as well as the entire team of the Psychiatric Rehabilitation Patient Reported Outcome Measurement project, notably Aid Rohanna, Paula Garber, Adi Telem and Ronit Mirkin. We acknowledge with thanks the support of The Center for Mental Health Research, Practice and Policy at the University of Haifa. Publisher Copyright: © 2017 Elsevier B.V.
PY - 2018/7
Y1 - 2018/7
N2 - Background: Disparities between mental health patients and their professional caregivers in quality of life appraisals have been identified, however, the structure that such disparities assume is unknown. Aims: To examine the network structure of quality of life appraisals and disparities using network analysis. Methods: Participants were 1639 persons with schizophrenia using psychiatric rehabilitation services and their primary professional caregivers (N = 582). Quality of life for persons with schizophrenia was measured based on an abbreviated version of the Manchester Short Assessment of Quality of Life. Appraisals were made self-reported and by professional caregivers. Disparities scores between the aforementioned were computed. Network analysis was performed on all quality of life appraisals. Sensitivity analyses were conducted. Results: The self-appraised network significantly (p < 0.05) differed by network strength compared to the caregiver-appraised network. Self-appraised network communities (clusters of quality of life items) were health conditions and socioeconomic system, whereas caregiver-appraised network communities were social activities, and combined socioeconomic and health conditions. Strength centrality was highest for self-appraised social status and for caregiver-appraised residential status (Z = 1.63, Z = 1.12, respectively). The disparity scores network clustered into two communities: social relations and combined financial and health conditions. The most central appraisal disparities were in social status. Conclusions: Quality of life differed when self-appraised by persons with schizophrenia compared to when appraised by their professional caregivers, yet the salient role of social relations was shared. The latter may be an initial focus of discussion by persons with schizophrenia and their caregivers.
AB - Background: Disparities between mental health patients and their professional caregivers in quality of life appraisals have been identified, however, the structure that such disparities assume is unknown. Aims: To examine the network structure of quality of life appraisals and disparities using network analysis. Methods: Participants were 1639 persons with schizophrenia using psychiatric rehabilitation services and their primary professional caregivers (N = 582). Quality of life for persons with schizophrenia was measured based on an abbreviated version of the Manchester Short Assessment of Quality of Life. Appraisals were made self-reported and by professional caregivers. Disparities scores between the aforementioned were computed. Network analysis was performed on all quality of life appraisals. Sensitivity analyses were conducted. Results: The self-appraised network significantly (p < 0.05) differed by network strength compared to the caregiver-appraised network. Self-appraised network communities (clusters of quality of life items) were health conditions and socioeconomic system, whereas caregiver-appraised network communities were social activities, and combined socioeconomic and health conditions. Strength centrality was highest for self-appraised social status and for caregiver-appraised residential status (Z = 1.63, Z = 1.12, respectively). The disparity scores network clustered into two communities: social relations and combined financial and health conditions. The most central appraisal disparities were in social status. Conclusions: Quality of life differed when self-appraised by persons with schizophrenia compared to when appraised by their professional caregivers, yet the salient role of social relations was shared. The latter may be an initial focus of discussion by persons with schizophrenia and their caregivers.
KW - Epidemiology
KW - Network analysis
KW - Psychometric
KW - Quality of life
UR - http://www.scopus.com/inward/record.url?scp=85044762823&partnerID=8YFLogxK
U2 - https://doi.org/10.1016/j.schres.2017.12.017
DO - https://doi.org/10.1016/j.schres.2017.12.017
M3 - Article
C2 - 29325726
SN - 0920-9964
VL - 197
SP - 109
EP - 115
JO - Schizophrenia Research
JF - Schizophrenia Research
ER -
