Newborn screening on the cusp of genetic screening: From solidarity in public health to personal counselling

Margherita Brusa; Michael Y. Barilan

doi:10.1007/978-3-319-51783-4_29

Newborn screening on the cusp of genetic screening: From solidarity in public health to personal counselling

Margherita Brusa
, Michael Y. Barilan

Medicine Dean & Assoc. Deans

Tel Aviv University

Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-review

Abstract

The chapter opens with a history of newborn screening, highlighting the factors behind its worldwide dissemination and emergent controversies. The second part of the chapter explicates newborn screening as a hybrid of public health and clinical care. The third part of the chapter delineates a framework for democratic governance of newborn screening, which is based on the value of solidarity and which is attuned to possible advent of screening tests at the genetic level. This governance aims at deep participation of the public, and the empowerment of autonomous choices of individual patients.

Original language	English GB
Title of host publication	History of Human Genetics
Subtitle of host publication	Aspects of Its Development and Global Perspectives
Pages	503-522
Number of pages	20
ISBN (Electronic)	9783319517834
DOIs	https://doi.org/10.1007/978-3-319-51783-4_29
State	Published - 10 May 2017

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 16 Peace, Justice and Strong Institutions

Keywords

Genomics (genetic tests and databases)
Newborn screening
Public health (paediatrics)
Public participation
Solidarity

ASJC Scopus subject areas

General Social Sciences

Access to Document

10.1007/978-3-319-51783-4_29

Cite this

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KW - Newborn screening

KW - Public health (paediatrics)

KW - Public participation

KW - Solidarity

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ER -

Newborn screening on the cusp of genetic screening: From solidarity in public health to personal counselling

Abstract

UN SDGs

Keywords

ASJC Scopus subject areas

Access to Document

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