Digital health & self-experimentation: Design challenges & provocations

Markéta Dolejšová; Denisa Kera; Cristiano Storni; Rohit Ashok Khot; Ivan John Clement; Inka Pavelka; Puneet Kishor

doi:10.1145/3027063.3027071

Digital health & self-experimentation: Design challenges & provocations

Markéta Dolejšová, Denisa Kera, Cristiano Storni, Rohit Ashok Khot, Ivan John Clement, Inka Pavelka, Puneet Kishor

The Graduate Program in Science, Technology and Society

Bar-Ilan University

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

Abstract

Quantified self-experimentation with personal health is a growing activity among health enthusiasts, biohackers, and patients with chronic conditions. By collecting and sharing their health data through self-tracking devices and health networking services, self-experimenters engage in a unique form of n=1 citizen science-style research. This data sharing altruism is constrained by limited data security, validity, and socioeconomic access. We will explore these issues as design challenges. The workshop invites various stakeholders (private, corporate, non-profit, academic) to engage in a discussion and a performative prototyping of a design framework for transparent and just health self-experimentation.

Original language	English
Title of host publication	CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems
Subtitle of host publication	Explore, Innovate, Inspire
Pages	510-517
Number of pages	8
ISBN (Electronic)	9781450346566
DOIs	https://doi.org/10.1145/3027063.3027071
State	Published - 6 May 2017
Event	2017 ACM SIGCHI Conference on Human Factors in Computing Systems, CHI EA 2017 - Denver, United States Duration: 6 May 2017 → 11 May 2017

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings
Volume	Part F127655

Conference

Conference	2017 ACM SIGCHI Conference on Human Factors in Computing Systems, CHI EA 2017
Country/Territory	United States
City	Denver
Period	6/05/17 → 11/05/17

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Citizen science
Digital health
Quantified self
Self-experimentation
Self-tracking

All Science Journal Classification (ASJC) codes

Software
Human-Computer Interaction
Computer Graphics and Computer-Aided Design

Access to Document

10.1145/3027063.3027071

Cite this

Dolejšová, M., Kera, D., Storni, C., Khot, R. A., Clement, I. J., Pavelka, I., & Kishor, P. (2017). Digital health & self-experimentation: Design challenges & provocations. In CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems: Explore, Innovate, Inspire (pp. 510-517). (Conference on Human Factors in Computing Systems - Proceedings; Vol. Part F127655). https://doi.org/10.1145/3027063.3027071

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abstract = "Quantified self-experimentation with personal health is a growing activity among health enthusiasts, biohackers, and patients with chronic conditions. By collecting and sharing their health data through self-tracking devices and health networking services, self-experimenters engage in a unique form of n=1 citizen science-style research. This data sharing altruism is constrained by limited data security, validity, and socioeconomic access. We will explore these issues as design challenges. The workshop invites various stakeholders (private, corporate, non-profit, academic) to engage in a discussion and a performative prototyping of a design framework for transparent and just health self-experimentation.",

keywords = "Citizen science, Digital health, Quantified self, Self-experimentation, Self-tracking",

author = "Mark{\'e}ta Dolej{\v s}ov{\'a} and Denisa Kera and Cristiano Storni and Khot, {Rohit Ashok} and Clement, {Ivan John} and Inka Pavelka and Puneet Kishor",

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Dolejšová, M, Kera, D, Storni, C, Khot, RA, Clement, IJ, Pavelka, I & Kishor, P 2017, Digital health & self-experimentation: Design challenges & provocations. in CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems: Explore, Innovate, Inspire. Conference on Human Factors in Computing Systems - Proceedings, vol. Part F127655, pp. 510-517, 2017 ACM SIGCHI Conference on Human Factors in Computing Systems, CHI EA 2017, Denver, United States, 6/05/17. https://doi.org/10.1145/3027063.3027071

Digital health & self-experimentation: Design challenges & provocations. / Dolejšová, Markéta; Kera, Denisa; Storni, Cristiano et al.
CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems: Explore, Innovate, Inspire. 2017. p. 510-517 (Conference on Human Factors in Computing Systems - Proceedings; Vol. Part F127655).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

TY - GEN

T1 - Digital health & self-experimentation

T2 - 2017 ACM SIGCHI Conference on Human Factors in Computing Systems, CHI EA 2017

AU - Dolejšová, Markéta

AU - Kera, Denisa

AU - Storni, Cristiano

AU - Khot, Rohit Ashok

AU - Clement, Ivan John

AU - Pavelka, Inka

AU - Kishor, Puneet

PY - 2017/5/6

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AB - Quantified self-experimentation with personal health is a growing activity among health enthusiasts, biohackers, and patients with chronic conditions. By collecting and sharing their health data through self-tracking devices and health networking services, self-experimenters engage in a unique form of n=1 citizen science-style research. This data sharing altruism is constrained by limited data security, validity, and socioeconomic access. We will explore these issues as design challenges. The workshop invites various stakeholders (private, corporate, non-profit, academic) to engage in a discussion and a performative prototyping of a design framework for transparent and just health self-experimentation.

KW - Citizen science

KW - Digital health

KW - Quantified self

KW - Self-experimentation

KW - Self-tracking

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M3 - منشور من مؤتمر

T3 - Conference on Human Factors in Computing Systems - Proceedings

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EP - 517

BT - CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems

Y2 - 6 May 2017 through 11 May 2017

ER -

Dolejšová M, Kera D, Storni C, Khot RA, Clement IJ, Pavelka I et al. Digital health & self-experimentation: Design challenges & provocations. In CHI 2017 Extended Abstracts - Proceedings of the 2017 ACM SIGCHI Conference on Human Factors in Computing Systems: Explore, Innovate, Inspire. 2017. p. 510-517. (Conference on Human Factors in Computing Systems - Proceedings). doi: 10.1145/3027063.3027071

Digital health & self-experimentation: Design challenges & provocations

Abstract

Publication series

Conference

UN SDGs

Keywords

All Science Journal Classification (ASJC) codes

Access to Document

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Cite this