Newborn screening on the cusp of genetic screening: From solidarity in public health to personal counselling

Margherita Brusa, Michael Y. Barilan

نتاج البحث: فصل من :كتاب / تقرير / مؤتمرفصلمراجعة النظراء

ملخص

The chapter opens with a history of newborn screening, highlighting the factors behind its worldwide dissemination and emergent controversies. The second part of the chapter explicates newborn screening as a hybrid of public health and clinical care. The third part of the chapter delineates a framework for democratic governance of newborn screening, which is based on the value of solidarity and which is attuned to possible advent of screening tests at the genetic level. This governance aims at deep participation of the public, and the empowerment of autonomous choices of individual patients.

اللغة الأصليةالإنجليزيّة
عنوان منشور المضيفHistory of Human Genetics
العنوان الفرعي لمنشور المضيفAspects of Its Development and Global Perspectives
الصفحات503-522
عدد الصفحات20
رقم المعيار الدولي للكتب (الإلكتروني)9783319517834
المعرِّفات الرقمية للأشياء
حالة النشرنُشِر - 10 مايو 2017

All Science Journal Classification (ASJC) codes

  • !!General Social Sciences

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